Where does the time go?
Since I last wrote we've been to a pediatric Chiropractor and switched Lilah to a hypoallergenic formula.
The Chiropractor was awesome, but there was no change in her feedings or reflux.
The formula was, well, an adventure. Overall, Lilah seemed to be more comfortable with feeds, but she didn't take anything by bottle and the volume of formula that came out of her mouth and nose at each feeding was amazing. We have since switched back to our original formula.
They have increased her speech and OT visits and it seems like we will be at the hospital for visits at least once a week for the rest of the summer. They have me using a very soft brush to massage her limbs along with joint compression to work on her tactile sensory. This will hopefully help with her gagging which always leads to big spit ups.
We are also working with her and mouthing different textures to address the gagging. I gave both kids carrots the size of thick markers to try out. Neither seemed too impressed.
They also got to try out swimming for the first time this year. Both kids did really well. The g-tube does not put any restrictions on swimming. Yay! The very next day I gave Alec a bath and the splashing continued. The whole kitchen was wet.
Alec is starting to sleep through the night again. He is also insisting on being held at every waking moment. Almost any time he is put down on the floor he cries. He is getting really close to being able to stay in a seated position without support. He also does not stop talking. Sometimes I feel like I live with a little Ewok.
One more quick note: Today Lilah has rolled over five times (she had taken a break from rolling over the last few weeks). She would only flip from side to side where her legs are flipped over, but her torso is only on it's side. Today, lots of flipping all the way over. She really doesn't know what to do once it happens. For me, it is encouraging to see. They have been telling me to help her roll over, but the second I would touch her back or arm, she resisted and would go back to her back. Can you stay stubborn? I think it is safe to say this is Lilah's world and we are all just livin' in it. Have a wonderful night!
Below is a little slideshow since I added a bunch of photos. The thu
Since I last wrote we've been to a pediatric Chiropractor and switched Lilah to a hypoallergenic formula.
The Chiropractor was awesome, but there was no change in her feedings or reflux.
The formula was, well, an adventure. Overall, Lilah seemed to be more comfortable with feeds, but she didn't take anything by bottle and the volume of formula that came out of her mouth and nose at each feeding was amazing. We have since switched back to our original formula.
They have increased her speech and OT visits and it seems like we will be at the hospital for visits at least once a week for the rest of the summer. They have me using a very soft brush to massage her limbs along with joint compression to work on her tactile sensory. This will hopefully help with her gagging which always leads to big spit ups.
We are also working with her and mouthing different textures to address the gagging. I gave both kids carrots the size of thick markers to try out. Neither seemed too impressed.
They also got to try out swimming for the first time this year. Both kids did really well. The g-tube does not put any restrictions on swimming. Yay! The very next day I gave Alec a bath and the splashing continued. The whole kitchen was wet.
Alec is starting to sleep through the night again. He is also insisting on being held at every waking moment. Almost any time he is put down on the floor he cries. He is getting really close to being able to stay in a seated position without support. He also does not stop talking. Sometimes I feel like I live with a little Ewok.
One more quick note: Today Lilah has rolled over five times (she had taken a break from rolling over the last few weeks). She would only flip from side to side where her legs are flipped over, but her torso is only on it's side. Today, lots of flipping all the way over. She really doesn't know what to do once it happens. For me, it is encouraging to see. They have been telling me to help her roll over, but the second I would touch her back or arm, she resisted and would go back to her back. Can you stay stubborn? I think it is safe to say this is Lilah's world and we are all just livin' in it. Have a wonderful night!
Below is a little slideshow since I added a bunch of photos. The thu
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