Lilah continues to hover around the 20-30 ml mark for feeds. They are going to wait the weekend And take her off the thickened feeds since they are not helping.
Now that she has been off thrush treatment for a few days they have re-cultured her tongue. The last time they cultured it, she was on meds.
We are taking more and more with the nurses about what it might be like if she ends up being sent home with a feeding tube. It feels like we are getting to the end of the ideas to try.
We have had some good discussions with the staff and we can all agree that she just seems to hit a wall during the feeding that she just can't take anymore, however we know her tummy can take the volume it needs to because she can take 65ml and still be comfortable. She is a mystery!
At home, Zeke decided to try to give Alec a bath. I caught him licking the folds of Alec's neck.... Yuck! 😝
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