43

Today the occupational therapist worked with Lilah and got her to take 43 of her 50 ml feed by mouth before she fell asleep! And even better, she was comfortable while I held her afterward.

The nurse was able to do the same at the next feed. I am sort of cautiously optimistic, while holding my breath. These are definately small steps in the right direction but she has been so unpredictable I feel excited and terrified at the same time while we wait to see what will happen over the next few days.

Alec met his aunt, uncle and cousins on my side of the family today.

Update: Lilah's evening feeds were not so great. Tomorrow is a new day, here's hoping!

Out cold after her early lunch

Cousins Max and Sam and Aunt Angie